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August is National Spinal Muscular Atrophy Awareness Month

 

National Spinal Muscular Atrophy Awareness Month August is recognized as National Spinal Muscular Atrophy Awareness Month throughout the country.

Spinal muscular atrophy (SMA) is the leading genetic cause of death in babies under the age of two.  It affects families of all ethnicities, often with no prior history of the disease.

Newborns with SMA appear healthy, but over time a lack of muscular development becomes evident.  While intellectual development remains normal, muscle weakness often leads to respiratory failure and general debilitation. There are three types of SMA, each with varying degrees of severity and limited treatment options.

SMA Awareness Month strives to raise awareness of the condition, as well as to raise money to fund further awareness and research efforts.

National Spinal Muscular Atrophy Awareness Month

For more information on SMA, or to find a local SMA Awareness event in your area, visit the Cure SMA website.

Tattoo Artist Helps a Young Girl Add Art to Her Leg Braces

Tattoo Artist Helps a Young Girl Add Art to Her Leg Braces

Aaron Guillemette has owned the Up in Flames Tattoo Shop in Twin Falls, Massachusetts for 16 years. Recently though, a young lady helped give him a brand new appreciation for his art and talent when he was asked by 8-year-old Hope Laliberte to “tattoo” her leg braces!

Hope was born prematurely and has dealt with the medical challenges of cerebral palsy, blindness and a rare form of epilepsy since her birth at 24 weeks.

While her twin sister, Paige, has experienced very few health issues, Hope has had to eat a specialized diet to control her epilepsy and wear leg braces. So, when her daughter wanted special designs on her new set of braces, her parents set out to make that wish a reality.

Clinics do offer braces with designs on them. However, Hope was looking for something different. She wanted Disney villains—rather than princesses— on her braces.

Tattoo Artist Helps a Young Girl Add Art to Her Leg Braces Guillemette and his team tried various ways to get the artwork – which features the Little Mermaid’s Ursula and 101 Dalmatians villain Cruella de Vil – to adhere to the braces without coming off. Eventually, Guillemette’s designs were turned into labels, which were adhered to the plastic brace material and covered with polyurethane to keep them from scraping off.

Hope is absolutely thrilled with the result. Typically somewhat of a shy girl, she ran to Aaron and gave him a hug when she saw the braces. She loves wearing her braces now too!

Guillemette’s daughter is a classmate of Hope’s, so for him, designing the braces for a young lady with such strength and determination was something he was overjoyed to do.

Hope’s story has even garnered the attention of celebrities like Ashton Kutcher and Lil’ Wayne who have shared her story on social media, calling the braces “dope” and saying, “every kid deserves to feel awesome.”

MobilityWorks Adds New Wheelchair Restraint System to Product Selection

AMF Bruns of America Protektor® Brings New Easy-to-Use, Self-Tensioning Wheelchair Securement System to the USA Market

For over fifty years the family owned businesses of AMF Bruns have been providing the safest, fastest and easiest to use wheelchair restraint systems worldwide. AMF Bruns serves our customers by providing products that ensure a safe and efficient mobility experience.

Today AMF Bruns is recognized world wide as a leader in adaptive driving restraints and products. With their own in-house crash testing facilities, AMF Bruns products meet worldwide certifications of ISO 10542, SAE J2249, CSA Z605 and AS 2942.

Always an innovator in the industries they serve, AMF Bruns has pioneered several restraint products that have revolutionized the industry.

The Protektor® Restraint System retractors are easy to use and interchangeable. They function with any mounting system or vehicle. The retractors are built with a long lasting protected chrome cover. They are self-tensioning and self-locking with no hand tightening; making installation easy and can even be operated with only one hand.

The system also utilizes lap and shoulder belts, similar to a traditional restraint system to keep the passenger safely in the chair when the vehicle should stop suddenly or experience an impact.

Look for detailed information coming soon on our new AMF Bruns product line on the MobilityWorks wheelchair tie-downs and securement page.

MobilityWorks of Alexandria, VA is Now Open!

MobilityWorks of Alexandria

MobilityWorks is excited to announce that our new Alexandria, Virginia location is now open! Located in the Washington DC metro region, just south of our Nation’s Capital, the Alexandria store will be able to provide mobility products and services to individuals with disabilities, their family members and caregivers in Virginia, Maryland and surrounding areas. We anticipate this location to be one of our busier showrooms for sales, service and rentals!

Visit Us At:
5751 General Washington Drive, Suite D
Alexandria, Virginia 22312

Store Hours
Mon: 8:00 AM- 5 PM
Tue: 8:00 AM – 5 PM
Wed: 8:00 AM – 5 PM
Thu: 8:00 AM – 5 PM
Fri: 8:00 AM- 5 PM
Sat: By appointment only
Sun: Closed

Phone: 1-877-275-4907

Click here to learn more about our Alexandria Virginia location

Pre-Owned Used Wheelchair Vans May Come With a Warranty

When purchasing a pre-owned accessible vehicle, otherwise known as used handicap vans, we are often asked about the warranty. Just like a non-adaptive automobile or minivan purchased from an auto dealer, converted vehicles also come with the same OEM warranty from the manufacturer on the engine and transmission (i.e. the “power train”). This is typically provided by the chassis manufacturing company such as Toyota, Dodge, Chrysler or Honda. They are typically 5-years or 60,000 miles, whichever comes first.

The conversion itself though, such as the side-entry foldout ramp or in-floor automated ramp and kneeling system, typically also comes with its own 3-year, 36,000 mile warranty – at least for most leading conversion manufacturers like BraunAbility or VMI.

Larger mobility dealers, such as MobilityWorks, can also offer what is called “new/used“, a term that means a vehicle has a brand new conversion on a slightly used minivan, generally with under 40,000 miles. In this scenario, the warranty on the conversion would  begin at the time of purchase (for the full 3 years or 36k miles) and whatever remaining power train warranty on the chassis would still be in effect.

MobilityWorks can also offer extended warranty on vehicles, so long as they meet certain criteria. Check with our finance department or your local Certified Mobility Consultant on the warranty information and whatever options are available to you on your purchase.

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