The main mission of Leo’s Pride, a South Carolina based non-profit, is to “Love Every One”. Their organization also raises money for local families to purchase wheelchair accessible vehicles, and they are working to help find a cure for Spinal Muscular Atrophy (SMA).
Almost 5 years ago, Adam and Meredith Bugenske had their first child, Leo. Shortly after birth, Leo was diagnosed with Type 1 SMA. Meredith and Adam knew that they would have to make several changes in their lives to comfortably accommodate Leo, so they started a GoFundMe campaign.
The Bugenske’s initial fundraising efforts were so successful, that they immediately formed their non-profit. Since then, their organization has donated over $100,000 to local families for accessible transportation. They also host an annual “Go Leo Go!” event and race with proceeds being donated to SMA research.
Today, Leo is a very happy young boy that is excited about the new school year. His story has helped raise awareness for SMA, and continues to change the lives of others in their community. For more information please visit www.leospride.org.
Check out the video below of the most recent family to receive an accessible vehicle from Leo’s Pride:
Always consult with a tax advisor or legal counsel before starting any fundraising activity. Be sure to check with your local Medicaid (or other applicable assistance program) office to verify the permissibility of fundraising activities. We recommend that you review the eligibility requirements and the terms and conditions of any fundraising campaign with a trusted advisor before beginning any fundraising campaign.